I can only tell my story

2022 is the start of a new project for me. I have had a lot of time to consider what having young onset Parkinson’s and other health issues really means to me and mine. And I have come to the conclusion that it is increasingly important to me that I focus my efforts on a few key ideas rather than disapppate my energy on lots of small projects.

Enter Admission, my 2022 project. The idea behind this project is defined and discussed here. Suffice to say I want to show you what having a long term chronic disease does to your life, family and you.

An important part is to document the progress of my health throughout the year. So today’s job is to identify the measurements I will take every day to do this. They have been picked to be comprehensive but achievable enough to make daily noting easy to do. To that end, most will be collected by my smart watch and/or iPhone.

Sleep – hours sleep each night; wake up and go to bed times

Exercise levels – steps each day; movement calories burnt each day

Reflection – meditation done each day

Activity – whether day spent alone, with family, friends or other group

Meds efficacy – number of times my meds wear ‘off’ each day; estimate of period o time spent ‘off’ each day

Visual – use 1SE app to capture a picture or clip each day

These may be augmented by others depending on what happens during the year but this is the minimum.

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